Stories

Journey of a Facial Cleft

Journey of a Facial Cleft

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"Kung nakayanan namin, makakayanan din ninyo." - Gregory Viste (NCFPI Patient Parent) Kaming magulang ni Roejan Geri L. Viste ay ikinasal noong 2003 at inumpisahang harapin ang buhay ng isang may pamilya. Sa unang pagkakataon ay nagbuntis ang aking asawa at isinilang si Roejan noong Mayo 21, 2008. Kami ay nanabigla sa kalagayan ng aming anak. Lubos ang paghahanda namin sa pagsilang ni Roejan; kami ay regular na nagpapakonsulta, at ni minsan ay walang nakitang problema sa kanyang pagbubuntis ang mga doktor na sumuri sa asawa ko. Kaya't kami ay sobrang nagulat, nalungkot at nangamba sa kalagayan ni Roejan noong siya ay isinilang at ayon sa mga doktor ay meron siyang “facial cleft.” Pagkaraan ng isang buwan ay unti-unting nasira ang kanyang kanang mata at kami ay sinabihang dalhin siya…
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Jigsaw Puzzle

Jigsaw Puzzle

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"Love yourself like how you love and serve other people” - Aleah Pederoso (NCFPI Patient Volunteer) Ang buhay ko ay tila isang jigsaw puzzle bawat piraso nito ang siyang magdudugtong at magsasama-sama upang bigyan-kahulugan. Bata pa lang ako alam ko na may kakaiba sakin, iba ako sa pagkaraniwang bata. Sila? Walang marka ng tahi sa bibig, pantay ang pagkakahulma ng ilong, at higit sa lahat ang kanilang pananalita ay normal. Ipinanganak akong may “complete cleft lip and palate. Elementarya pa lang ako danas ko na ang mga samo’t-saring pangungutya mula sa aking mga klasmeyt at mga schoolmate. Pagtuntong ko ng sekondarya, saksi ang aking mga mata sa mga mapanuring titig, mga pigil na tawanan at dinig ng aking tenga ang mga salitang mapagpintas sa tuwing makikita nila ako. Nariyan ang…
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Love of a Mother

Love of a Mother

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“Hindi madali para sa isang magulang ang magkaroon ng anak na cleft lip and palate, ngunit dahil sa suporta ng NCFPI ay mas nakakita ako ng pag-asa para sa anak ko.” -Jona D. Neis (NCFPI Patient Parent) Nang isilang ko si Samantha Coleen Cuevo taong 2016, laking gulat ko ng makita ko ang aking anak dahil isa siyang "bingot". Sa halip na panghinaan ako ng loob ay sinabi ko sa sarili ko na walang ibang susuporta sa anak ko kung hindi kaming pamilya niya. Ngunit, dahil sa takot na laitin siya ng ibang tao ay hindi ko siya nilalabas sa aming bahay lubos akong nasasaktan kapag may nanlalait na ibang tao sa kanya. Kung sino-sino ang taong nilapitan ko upang makahanap ng makakatulong sa kondisyon ni Samsam, hanggang sa isang…
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Changing person’s life through volunteering

Changing person’s life through volunteering

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"Simply knowing that you can contribute a positive change in person's life is more than enough." - Dr. Jesus "Jay" A. Lizardo II (NCFPI Volunteer Surgeon) I have been a volunteer surgeon in NCFPI since 2011. I first learned of this foundation through Dr. Bernie Tansipek in UP-PGH as a plastic surgery resident. I assisted him in operations such as cheiloplasty, palatoplasty, facial cleft repair as well as orthognathic surgery. In 2012, I was blessed to be supported by NCFPI as a seed fellow at the Craniofacial Center of Chang Gung Memorial Hospital in Taoyuan, Taiwan, training in auricular reconstructive surgery (microtia surgery). I continue to volunteer in NCFPI simply knowing that I contribute in my own small way for a positive change in a person's life . In my…
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Embracing your uniqueness!

Embracing your uniqueness!

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"Through my talent, I am reminded that my condition will never be a hindrance to inspire people." - Desserrei Salinga Panugot (NCFPI Patient) We got to know NCFPI because of my father's colleague. When he found out I was born with a cleft he immediately went to our home to show us some NCFPI flyers. I was only two weeks old that time when they took me to Our Lady of Peace Hospital to have some assessment. Now, I am turning thirteen this coming October. The foundation helped me to avail for free the three operations I had. Ever since then, I gained back the confidence I'd lost -- not intimidated anymore to socialize with other people. But you know what? God still never fails to amaze me. Even though…
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Baby Arci: #CleftSmile

Baby Arci: #CleftSmile

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"Kahit sa panahon ng pandemic ay patuloy pa rin ang NCFPI sa kanilang pagtulong kaya't buong puso ang aking pasasalamat dahil bumalik ang magandang ngiti ng aming munting prinsesa." - Jaynabelle M. Alcantara (NCFPI Patient's Mother) Nang ipinanganak ko si Arci Isabelle M. Alcantara noong Dec.7,2019 ay hindi namin inakala ng asawa ko na magkakaroon ng cleft lip at Alveolus ang aming prinsesa. Noong sinabi ng Doctor na may bingot daw ang sanggol na aking isinilang ay lubos akong nagtaka dahil naging maingat ako sa aking pagbubuntis at sa tatlong ultrasound ko ay hindi nakita na may ganoong kondisyon si Arci. Sa unang sulyap ko palang kay Arci ay kagandahan na agad niya ang nakita ko, may pangamba man sa aking dibdib sa magiging reaksiyon ng asawa at pamilya ko…
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Happy Grandparents’ Day

Happy Grandparents’ Day

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"Wala sa edad ang pagtulong, ang mahalaga ay ang pusong naghahangad na makapagbigay ngiti sa kapwa" - Mergie Tibay (NCFPI Volunteer) Taong 2010, nang nakilala ko ang NCFPIs pamamagitan na rin ng pagiging volunteer ko sa Tahanang Walang Hagdanan. Marami na akong karanasan sa pag volunteer hindi lamang sa NCFPI pati na rin sa mga taong nangangailangan ng tulong na lumalapit sa akin. Lubos kong priyoridad ang mga may kapansanan sapagkat dahil may anak din akong PWD, siya ay isang visual impaired. Napakasarap sa pakiramdam na maging kabahagi ka ng isang foundation tulad ng NCFPI na may mababait na staff, doctors, at iba pang volunteer. Lubos rin ang aking kasiyahan na matulungan ang mga magulang at pasyente lalo na't ang araw ng kanilang operasyon ay kanilang napagtagumpayan. Tuwing Lunes, 4am…
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You are beautiful inside and out!

You are beautiful inside and out!

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“Always remember that you are beautiful inside and out. Some people might judge us. They might see us differently. But we are special in our own way.” - Joanna Mae B. Pobleto (NCFPI patient) I was born in Bacolod City and people there have always been curious about my medical condition. I have a cleft and a big hole in my face. I can't even drink milk properly so my parents decided that I need to stay at the hospital for the insertion of an orogastric tube (OGT). But due to a lack of resources, my parents decided to look for a foundation that can help me. Someone contacted my parents to help us to post my condition in a newspaper. My parents were so thankful because a lot of…
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My Taiwan Trip

My Taiwan Trip

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Hi. I'm Cherry Mariano, 22 years old, and [I'm] one of the thousands of patients out there that was fortunate enough to be a recipient of Noordhoff Craniofacial Foundation Philippines. It greatly helped me in my operation [for] cleft lip and palate. I'm one of those who suffered relentless bullying because of this condition, but who at the same time, remained firm in continuing through despite this. (more…)
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My Cleft Journey: “GROW THROUGH WHAT YOU GO THROUGH”

My Cleft Journey: “GROW THROUGH WHAT YOU GO THROUGH”

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This cleft journey has been complicated. It’s been challenging and uncomfortable, physically and emotionally. However, it’s also been truly amazing. I have learned to appreciate my strength and celebrate my bravery. I’ve used what was once painful and worked to turn it into something lovely. But the best and most beautiful part of this journey has been the people. I’m Katrina A. Pilla, 20 years old. I was born with complete left cleft lip and palate. (more…)
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